Adult Proxy Online Record Access - Differences Across Four Countries

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A3 Kirjan tai muun kokoomateoksen osa
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Date

2025-10-02

Department

Department of Computer Science

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Language

en

Pages

5

Series

Studies in Health Technology and Informatics ; Volume 332

Abstract

Patients' online record access (ORA) enables patients to involve their informal caregivers in care management by sharing health information, either through proxy access functionality or informally. The European Health Data Space mandates that member countries should ensure that patients can assign a proxy to have online access to their health data. In this study, we aimed to explore the current state of proxy ORA in four countries with mature ORA implementations; Sweden, Norway, Finland, and Estonia. We identified three types of proxy ORA; full proxy ORA, no proxy ORA, and controlled proxy ORA. Further guidance on ethically sound and secure proxy ORA functionality that complies with national and EU regulations and policies is warranted to ensure equal rights for citizens across Europe.

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Keywords

Electronic Health Record, Information Sharing, Patient Portal, Patients’ Online Record Access, Proxy Access

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DOI

10.3233/SHTI251530

Citation

Hägglund, M, Scott Duncan, T, Hagström, J, Kujala, S, Dudkina, A, Moll, J, Kharko, A, Johansen, M A & Blease, C 2025, Adult Proxy Online Record Access - Differences Across Four Countries. in Good Evaluation - Better Digital Health : Proceedings of the EFMI Special Topic Conference 2025. Studies in Health Technology and Informatics, vol. 332, IOS Press, pp. 216-220, Special Topic Conference of the European Federation for Medical Informatics, Osnabrück, Germany, 20/10/2025. https://doi.org/10.3233/SHTI251530

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https://urn.fi/URN:NBN:fi:aalto-202510228454

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[article-cris] Perustieteiden korkeakoulu / SCI