Clinician Experiences of Patient Access to Health Records - An Interview Study in Home Dialysis Care
Loading...
Access rights
openAccess
CC BY-NC
CC BY-NC
publishedVersion
URL
Journal Title
Journal ISSN
Volume Title
A4 Artikkeli konferenssijulkaisussa
This publication is imported from Aalto University research portal.
View publication in the Research portal (opens in new window)
View/Open full text file from the Research portal (opens in new window)
View publication in the Research portal (opens in new window)
View/Open full text file from the Research portal (opens in new window)
Unless otherwise stated, all rights belong to the author. You may download, display and print this publication for Your own personal use. Commercial use is prohibited.
Date
Department
Major/Subject
Mcode
Degree programme
Language
en
Pages
5
Series
Context Sensitive Health Informatics : AI for Social Good: Proceedings of CSHI 2025, pp. 96-100, Studies in Health Technology and Informatics ; Volume 326
Abstract
Patient-accessible electronic health records (PAEHRs) are regarded as a means to empower patients, especially those with chronic conditions, to take greater responsibility for their own health. However, clinicians often express concerns that PAEHRs may negatively impact their work and patient care, particularly if patients misinterpret their data. We investigated how clinicians working in home dialysis care for patients with chronic kidney disease experienced PAEHRs. Eleven clinicians participated in semi-structured interviews. The effects of PAEHRs varied depending on the patient and their circumstances. When the patient was knowledgeable and motivated, PAEHRs were seen to reduce clinicians' workload and improve communication. Conversely, the impacts were negative with patients who were already anxious or otherwise had challenges in understanding their data. Although home dialysis patients are generally considered more capable of taking responsibility for their own health than the average patient, the challenges reported by clinicians were similar to those observed in previous studies involving other patient groups. PAEHRs should be examined from a socio-technical systems perspective, taking into account patients' situations, capabilities, and experiences, and the communication between patients and clinicians. Further research is needed to explore the socio-technical aspects that influence the impact of PAEHRs on clinicians' work with individuals who have chronic conditions requiring significant patient involvement, such as home dialysis.Description
Keywords
Other note
Citation
Aspelund, A, Viitanen, J, Hämäläinen, H, Rauta, V & Lääveri, T 2025, Clinician Experiences of Patient Access to Health Records - An Interview Study in Home Dialysis Care. in Context Sensitive Health Informatics : AI for Social Good : Proceedings of CSHI 2025. Studies in Health Technology and Informatics, vol. 326, IOS Press, pp. 96-100, Context Sensitive Health Informatics, Bradford, United Kingdom, 23/05/2025. https://doi.org/10.3233/SHTI250246