Browsing by Author "Karisalmi, Nina"

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Comparing Three Methods to Capture Multidimensional Service Experience in Children’s Health Care: Video Diaries, Narratives, and Semistructured Interviews
(2019-03-28) Litovuo, Lauri; Karisalmi, Nina; Aarikka-Stenroos, Leena; Kaipio, Johanna
A1 Alkuperäisartikkeli tieteellisessä aikakauslehdessä
Interest in studying experiences has grown rapidly; however, little attention has been paid to the applicability of qualitative methods for capturing the service experience in children’s health care. This study examined and compared three data collection methods to capture the multidimensional service experience of child patients and their families: video diaries with child patients, narrative interviews with parents of a child patient, and semistructured interviews with health-care professionals working with child patients. The methods were analyzed with respect to their benefits and limitations and their applicability for capturing the multidimensional service experience presented by service experience co-creation framework, including the temporal, factual, spatial, locus, control, and organizational dimensions. The key findings are as follows: (A) The video diary method has the potential to capture the temporally broad and spatially complex phenomenon of child patients’ service experience and enables researchers to capture service experience created beyond the hospital setting (e.g., through hobbies or in school). (B) Narratives with parents have the potential to capture the temporal, spatial, locus, and organizational dimensions through stories and are well-suited for mapping children’s experiences and the actors influencing them. (C) Semistructured interviews with health-care professionals have the potential to capture a generalized but temporally narrow view of the service experience of child patients, concentrating on experiences within hospital settings. This is beneficial for developing health-care service providers’ actions. Structured analysis and comparison of methods guides researchers to select appropriate methods to take a complementary approach in the understanding of experiences in the context of children’s health care.
Development of the Patient Experience Questionnaire for Parents of Pediatric Patients (PEQP)
(2019-01-01) Kaipio, Johanna; Karisalmi, Nina; Hiekkanen, Kari; Stenhammar, Hanna; Lahdenne, Pekka
A3 Kirjan tai muun kokoomateoksen osa
Patient experience (PX) is an important evaluation criterion for quality in healthcare. Compared to patient satisfaction, however less research has focused on the development of instruments to measure experiences of patients and their families. In the article, we describe the process of developing a PX questionnaire for the parents of pediatric patients in the context of children's hospital and illustrate the questionnaire items for measuring PX. The phases of the development process included retrospective interviews, description of the themes influencing PX and the metrics for measuring PX, as well as iterative development of three versions of questionnaires including data gathering and factor analysis. The final versions of the surveys suggested for implementation at the hospitals include eight PX statements for the outpatient clinic and five statements for the ward. Compared to satisfaction surveys, the developed surveys emphasize the aspects of parent's attitude towards the illness, support for families, and daily arrangements with a child patient.
Digital service for measuring children's patient experience of preoperative medical clowning
(2018-11-12) Mäenpää, Katja
Perustieteiden korkeakoulu | Master's thesis
Healthcare organisations have recently recognised patient experience as an important part of their quality care. By measuring and improving the patient experience, healthcare organisations can affect multiple parts of the care. However, children's patient experience has yet been understudied although it has been recognised that adults cannot provide as accurate views of children's experiences as children. This thesis focused on studying how digital services can be used to measure patient experiences. A digital service was designed and developed for measuring children's patient experience. Then, the digital service was used and evaluated in a case study, where the effects of preoperative medical clowning to patient experience were studied. The patient experience was studied from three different point of views; the child patients, their parents and the nurses. The case study was conducted at HUS Children's Hospital in Helsinki. This thesis was part of the LAPSUS research project. Based on the results of this study, a digital service can be used to measure patient experience. Children as young as 4 can report their experiences with child-friendly digital services. Findings of the case study indicate that preoperative medical clowning affects the patient experience of child patients and their parents in a really positive way. The study did not find differences in the cannula insertion procedure regarding the presence of the preoperative medical clown from the nurses' point of view. This study provides insights on patient experience and ways to measure it with a digital service. Also, this thesis was the first study about the effects of the preoperative medical clowns to patient experience in Finland. The recommendations of the study are to support both patient experience measurement with a digital service and preoperative medical clowns more in children's hospitals.
Ei-entsymaattiset sähkökemialliset glukoosi- ja glutamaattianturit
(2014-12-09) Karisalmi, Nina
Sähkötekniikan korkeakoulu | Bachelor's thesis
Encouraging the Use of eHealth Services: A Survey of Patients' Experiences
(2019-02) Karisalmi, Nina; Kaipio, Johanna; Kujala, Sari
A4 Artikkeli konferenssijulkaisussa
To promote eHealth services effectively, it is important to understand what motivates people to use these services and how they can be further supported. Our aim was to explore user experiences with eHealth services from the viewpoint of patients with chronic illnesses. The survey data included responses from 397 patients actively using eHealth services in Finland. Most of them had positive experiences using the services. We found that these positive experiences and the perceived benefits of eHealth services encouraged patients to continue using the services. In order to bolster the use of eHealth services, patients and other potential users must be informed about the new services and how to access them. Healthcare personnel play a key role in introducing eHealth services to patients and instructing them on their use.
Hoitohenkilökunnan rooli potilaiden motivoinnissa ja ohjaamisessa terveydenhuollon sähköisten palveluiden käyttöön
(2018-05-21) Karisalmi, Nina; Kaipio, Johanna; Kujala, Sari
A1 Alkuperäisartikkeli tieteellisessä aikakauslehdessä
The number of eHealth services supporting patients’ self-care and self-management is increasing. Patients are expected to participate more actively in their care, but nevertheless chronically ill patients use eHealth services less frequently than healthy citizens. The healthcare personnel’s motivation and guidance could increase willingness and capability of patients to use eHealth services. This article reports a study, which investigates what kind of support patients receive and how patients wish the healthcare personnel to support them in using eHealth services as well as what kind of eHealth services patients want to use in future. The study was conducted in Finland. A total of 397 patients representing three patient organizations for chronic illnesses (heart disease, diabetes or cancer) answered to the online questionnaire. Most of the respondents had used at least one eHealth service (92%) and the most common purpose was to seek information. eHealth services were mostly used on the patients’ own initiative. Only less than half of the patients (47%) had received information about eHealth services from the healthcare personnel. Even less participants had been encouraged (30%) or advised (21%) how to use these services by the healthcare personnel. The study shows that patients wish for a more active manner from the healthcare personnel in informing about the availability of eHealth services as well as providing guidance and encouragement in using the services. The wishes about future eHealth services were rather modest. Respondents wished for a more versatile digital booking of medical appointments and novel, easy-to-use communication channels with the personnel. The results suggest that it is not only sufficient to increase the number of eHealth services, but also the active patients need more information about eHealth services as well as guidance in their use.
Illustrating User Needs for eHealth With Experience Map : Interview Study With Chronic Kidney Disease Patients
(2025) Valkonen, Paula; Hölsä, Sini; Viitanen, Johanna; Leinonen, Sini; Karisalmi, Nina; Rauta, Virpi
A1 Alkuperäisartikkeli tieteellisessä aikakauslehdessä
Background: Chronic kidney disease (CKD) is a common condition worldwide and home dialysis (HD) provides economic, quality of life, and clinical advantages compared to other dialysis modalities. Human-centered design aims to support the development of eHealth solutions with high usability and user experience. However, research on the eHealth needs of patients using HD is scarce. Objective: This study aimed to support the design of eHealth for patients with CKD, particularly for patients using HD, by developing a kidney disease experience map that illustrates user needs, concerns, and barriers. The research questions were (1) what experiences do patients, particularly older adults, have in their everyday lives with CKD? (2) what user needs do patients with CKD have for HD eHealth? (3) how can these needs be illustrated using the experience map technique? The study focused on patients aged >60 years, as they are at a higher risk of chronic conditions. The study was conducted as part of the eHealth in HD project, coordinated by Hospital District of Helsinki and Uusimaa, Finland. Methods: In total, 18 patients in different care modalities participated in retrospective interviews conducted between October 2020 and April 2021. The interviews included a preliminary task with patient journey illustrations and questions about their experiences and everyday lives with CKD. The data analysis was conducted using a thematic analysis approach and the process included several phases. Results: On the basis of the thematic analysis, 5 categories were identified: healthy habits, concerns about and barriers to eHealth use, digital communication, patients’ emotions, and everyday life with CKD. These were illustrated in the first version of the kidney disease experience map. The patients had different healthy habits regarding social life, sports, and other activities. They had challenges with poorly functioning eHealth software and experienced other factors, such as a lack of interest and lack of skills for eHealth use. Technical devices do not always meet the emotional or physical needs of their users. This caused feelings of frustration, worry, and fear in patients, yet also fostered situational awareness and hope. Conclusions: The experience map is a promising method for illustrating user needs and communicating the patient’s voice for eHealth development. eHealth offers possibilities to support patient’s everyday life with chronic disease. The patient’s situation and capacity to use eHealth solutions vary with their everyday challenges, opportunities, and their current stage of treatment. The kidney disease experience map will be used and further developed in the ongoing research project “Better Health at Home—Optimized Human-Centered Care of Predialysis and Home Dialysis Patients” (2022 to 2026).
Improving children’s patient experience with a mobile hospital clowning application: Initial user experiences from the clowns’ perspective
(2023-04-20) Erola, Eira; Viitanen, Johanna; Karisalmi, Nina; Savolainen, Kaisa
A1 Alkuperäisartikkeli tieteellisessä aikakauslehdessä
eHealth solutions are increasingly being developed to support patient care and improve patients’ experiences (PXs). Recently, the coronavirus disease 2019 (COVID-19) pandemic and the shortage of nurses in several countries, including Finland, have further underscored the need for new digital services. In the context of children’s hospitals, care-supporting services include hospital clowns who work to provide emotional support for children and improve their PXs. Hospital clowns are known to have a positive impact on children’s PX. The Finnish hospital clown organization Sairaalaklovnit ry has published its first mobile application Sairaalaklovnit to provide a digital contact platform to reach patients remotely via messages. The application is mainly targeted at child patients and includes both entertainment and messaging facets for communication between child patients and hospital clowns. The two main user groups for this application can be considered to be child patients and hospital clowns. This article presents the data and results found during a study related to the user experience (UX) of the Sairaalaklovnit application. With the research questions, “Which aspects influence the UX of the hospital clown application?” and more specifically, out of the two user groups, “How do Finnish hospital clowns experience the new hospital clown mobile application?”, this study aims to gain an understanding of how Finnish hospital clowns experience the newly developed application for expanding physical contact with patients into a digital form. The qualitative data used in this article were collected in the summer of 2022 through an online questionnaire (n = 5) and semi-structured interviews (n = 3) with hospital clowns. The hospital clowns were mostly satisfied with the published application, but some deficiencies were mentioned. Most of the complaints were related to technical issues. However, the application was seen as a useful tool that can bridge physical and digital contact with children. The developer has been made aware of the technical issues and fixes expected in the future. For future research, it can be beneficial to rerun the UX study for the hospital clowns and possibly with a larger sample to see whether there have been any changes after the technical issues have been solved. Moreover, studying how child patients, which constitute the other user group, experience the new application, can prove to be beneficial for possible future development.
Improving patient experience in a children's hospital: New digital services for children and their families
(2018-01-01) Karisalmi, Nina; Kaipio, Johanna; Lahdenne, Pekka
A4 Artikkeli konferenssijulkaisussa
Digital services are increasingly being developed for the healthcare sector. In Finland, the five university hospitals in 2016 launched a virtual hospital platform, Healthvillage.fi that includes several portals. The aim of this study is to explore the needs of children and their families related to digital services in the context of a children's hospital in Finland. Two methods were used to examine the needs and expectations of children and their families: a web-based survey for parents and video diaries for children. We identified nine categories of needs and noticed they were related to better communication between families, healthcare professionals, and peers. These observations were used to further analyze possible novel digital services for child patients' families to support and to complement the recently launched Healthvillage.fi platform.
Kohti vertaistuen sähköisiä palveluita: Kyselytutkimus erityislapsipotilaiden vanhemmille
(2015) Karisalmi, Nina; Tyllinen, Mari; Kaipio, Johanna
A1 Alkuperäisartikkeli tieteellisessä aikakauslehdessä
Lapsus-tutkimushanke: Näkökulmia lapsiperheen potilaskokemukseen
(2018-05-21) Kaipio, Johanna; Stenhammar, Hanna; Karisalmi, Nina; Immonen, Susanna; Nieminen, Marko; Nieminen, Mika; Mannonen, Petri; Litovuo, Lauri; Aarikka-Stenroos, Leena; Lahdenne, Pekka
A1 Alkuperäisartikkeli tieteellisessä aikakauslehdessä
Patient experience of children, adolescents and their families has been studied only a little. Patient experience is a multidimensional and ambiguous concept and thus, it is challenging to define and measure. Lapsus research project investigates the perspectives of pediatric patients and their families on hospital visits, received care and services, and the everyday life with the illness. The project is funded by Tekes and is closely related to the design of the New Children’s Hospital. Lapsus is a joint project of two universities, Aalto University and Tampere University of Technology, and three children’s hospitals, Hospital District of Helsinki and Uusimaa, Oulu University Hospital and Turku University Hospital. The aim of the research project is to promote that the experiences of the families with pediatric patients are taken into consideration when constructing new hospitals and improving healthcare services. From the scientific standpoint, the key objectives include describing the dimensions of patient experience from the perspectives of pediatric patients and their families, developing methodology and instrumentation for monitoring patient experience and value creation, and linking patient experience data to continuous improvement. The project consists of several sub-studies: A) The dimensions of the patient experience and patient journeys of families with pediatric patients, B) Questionnaires for measuring the patient experience of parents, C) Video diary as an instrument for studying the patient experience of adolescents, D) Photo elicitation method for studying children’s patient experience, E) Ecosystem’s role in patient experience, F) Collecting and utilizing patient feedback in children’s hospital. The research methods developed in the Lapsus project together with the practical experiences gained from the studies, help to understand which issues are meaningful and valuable for the patients and how patient experience data can be collected and utilized to improve the services of children’s hospital.
Measuring patient experiences in a Children’s hospital with a medical clowning intervention: a case-control study
(2020-04-26) Karisalmi, Nina; Mäenpää, Katja; Kaipio, Johanna; Lahdenne, Pekka
A1 Alkuperäisartikkeli tieteellisessä aikakauslehdessä
Background: Because the healthcare sector is shifting to a customer-oriented approach, it is important to understand experiences of children as users of healthcare services. So far, studies that measure the influence of medical clowning on patient experiences are scarce. This study aims to measure experiences of children and their parents during day-surgery in hospital setting. Methods: A case-control study was conducted in a large Finnish children’s hospital. Seventy children aged 4–17 years coming for a minor operative procedure including pre-operative cannula insertion prior to surgery were included. Thirty-eight children were exposed to the medical clowning intervention and 32 children (the reference group) did not receive exposure to medical clowning. A novel digital survey tool was used to measure patient experiences before and after the insertion of a venous cannula needed for anaesthesia. The children were asked about their emotions, anxiety levels, the pain from the cannula insertion and the best and worst things about the hospital. The parents were asked about their emotions, expectations and the fluency of the procedure and the hospital day. Results: Before the procedure, 32% or 36% of the children in the intervention group and 44% or 28% of those in the reference group expressed positive or neutral emotions, respectively. After the procedure, 76% or 63% of children in the intervention group or reference group, respectively, expressed positive emotions. The intervention group rated the medical clowns as the best aspect of the hospital day. Both groups reported that the best aspects of the hospital day were related to the nurses and food and the worst were related to waiting and pain. Most commonly the parents felt uncertainty, anxiety or calmness before the procedure and relief afterwards. Their expectations towards the procedure related to its success and the certainty of the diagnosis. Conclusions: The results show a trend towards more positive emotions in children with exposure to medical clowning. The digital survey tool was suitable for gathering information about the experiences of children and their parents. Information on emotions and expectations of children and parents during a procedure is useful when improving the quality of healthcare services. Trial registration: Current Controlled Trials NCT04312217, date of registration 17.03.2020. Retrospectively registered. Keywords: Patient experience, children’s hospital, Children, Parents, Digital survey tool, Case-control study, Medical clowns
Mobile hospital clowning for children – Analysis of the application development from the end users’ perspective
(2022-12-13) Erola, Eira
Perustieteiden korkeakoulu | Master's thesis
Hospital clowning is an art form and a service offered in the hospital setting for bringing joy and alleviating anxieties related to being in a hospital and undergoing different types of procedures. The Finnish hospital clown organization, Sairaalaklovnit ry, expanded their work from live contacts into a digital world by developing a mobile application. The goal of this thesis is to analyze the development of the new application from the perspective of user experience. The four research questions of this thesis are as follows: 1) What factors should be considered when developing a hospital clown mobile application for child patients? 2) What are the Finnish hospital clowns’ experiences with the development process and the features implemented in the developed hospital clown mobile application? 3) How can the child patients’ experiences of the chosen features be evaluated in a hospital setting? During the thesis study, the development process was observed from the project’s kick-off meeting until the publication of the application. The data was gathered through meeting observations, interviews with hospital clowns, and a questionnaire. In addition to the case study of the development, a user experience study with children was designed and as part of this study design, a research plan document for future user experience research to be conducted with child patients was created. The results of this thesis study show how a mobile application for hospital clowning can be developed, what obstacles the development process can face, and how the client can experience those obstacles and the development process. Also, findings from the pilot study were collected to validate the created research plan.
Patient Experience from an eHealth Perspective: A Scoping Review of Approaches and Recent Trends
(2022-12-04) Viitanen, Johanna; Valkonen, Paula; Savolainen, Kaisa; Karisalmi, Nina; Hölsä, Sini; Kujala, Sari
A2 Katsausartikkeli tieteellisessä aikakauslehdessä
Objectives: Patients’ experiences are increasingly gaining interest in multiple research fields. Researchers have applied various approaches to studying patient experience (PX); however, there is no commonly agreed-upon definition of PX. This scoping review focuses on PX from an eHealth perspective. Our aim was to: 1) describe how PX has been defined, 2) investigate which factors influencing PX and components of PX have been identified and researched, 3) explore the methods used in studying PX, and 4) find out the recent trends in PX research from an eHealth perspective. Methods: We selected six major journals covering the fields of health informatics, PX, and nursing informatics. Using the search terms “patient experience” and technology-related terms (e.g., digital, eHealth), we searched for articles published between 2019 and 2021. From 426 articles, 44 were included in the analysis. Results: Multiple concepts and meanings are used to refer to PX. Few articles include vague descriptions of the concept. Numerous eHealth factors are influencing PX, as well as components considering PX. The influencing factors were related to eHealth solutions’ type and quality, and care process, when the components of PX were related to communication, remote interaction, risks and concerns, and patients’ attitudes towards telehealth. Surveys were the main method used to study PX, followed by interviews. Conclusions: PX is a complex and multifaceted phenomenon, and it is described as a synonym for patient satisfaction and telehealth experiences. Further multidisciplinary research is needed to understand PX as a phenomenon and to outline a framework for the research.
Potilaskokemus lapsipotilaiden omin sanoin kerrottuna - Videopäiväkirjan soveltuvuus aineiston keruutavaksi
(2016-10-31) Karisalmi, Nina
Sähkötekniikan korkeakoulu | Master's thesis
Potilaat odottavat yhä enemmän terveydenhuollon palveluilta, jolloin terveydenhuoltoala muuttuu kohti perinteistä palvelualaa. Terveydenhuollon tarjoajat ovatkin alkaneet kiinnittää huomiota potilaskokemukseen ja käyttävät potilaskokemuksen vertailua enenevissä määrin toimintansa arvioimiseen. Myös Suomessa terveydenhuoltosektorin kiinnostus käyttäjien osallistumista ja potilaskokemuksen syvempää ymmärrystä kohtaan on kasvanut Uusi Lastensairaala 2017 -projektin myötä. Aalto-yliopisto on mukana Lapsus-tutkimushankkeessa, jonka tarkoituksena on selvittää lapsipotilaiden ja heidän perheittensä näkemyksiä sairaalakäynneistä, saadusta hoidosta ja jokapäiväisestä elämästä sairauden kanssa. Projektin aikana selvisi, että Helsingin ja Uudenmaan sairaanhoitopiiriltä (HUS) puuttuu tällä hetkellä toimiva palautekanava lasten potilaskokemuksen selvittämiseksi. Tässä diplomityössä selvitettiin, mitä ja miten lapset kertovat omin sanoin potilaskokemuksestaan. Menetelmäksi valittiin videopäiväkirja, koska sen koettiin motivoivan lapsia osallistumaan ja paljastamaan asioita, joita ei muilla tutkimusmenetelmillä saisi selville. Mukaan valikoituivat 10–16-vuotiaat lapset, joilla on pitkäaikaissairautena joko reuma, suolistosairaus tai diabetes. Diplomityön päätavoitteena oli tutkia, miten videopäiväkirjamenetelmä soveltuu aineiston keruutavaksi lasten potilaskokemuksen selvittämiseksi sekä arvioida, voisiko HUS jatkossa käyttää sitä itsenäisesti jatkuvan palvelukehityksen perustana. Lapsille vietiin lainaan tablettitietokone, jolla he kuvasivat 9–10 päivän ajan videopäiväkirjaa annettujen tehtävien pohjalta. Tehtävät oli laadittu mukaillen McCarthy & Wright:n mallia käyttäjäkokemuksesta. 1–2 viikkoa videopäiväkirjan palautumisen jälkeen osallistujat haastateltiin. Laadullinen aineisto analysoitiin käyttämällä Atlas.ti-ohjelmaa. Videopäiväkirjoilla saatiin kerätyksi visuaalisesti ja verbaalisesti rikasta aineistoa, mutta myös puutteita havaittiin. Teinien, varsinkin poikien, motivointi osallistua tutkimukseen osoittautui hankalaksi ja kieltäytymisprosentti oli korkea, 59 %. Jotta HUS voisi käyttää menetelmää palautekanavanaan, tulisi nuorten motivointiin kiinnittää enemmän huomiota lisäämällä menetelmän leikillisyyttä, tarjoamalla vaihtoehtoisia suoritustapoja sekä ottamalla lapsen ikä ja yksilöllinen elämäntilanne paremmin huomioon. Myös muita kommunikointikanavia kuten WhatsApp:ia, Snapchat:ia tai Skype-puheluita voisi tutkia vaihtoehtoisina suoritustapoina.
Potilaskokemuskyselyn kehittäminen lastensairaalan potilaiden vanhemmille
(2017-05-22) Kaipio, Johanna; Mannonen, Petri; Stenhammar, Hanna; Karisalmi, Nina; Lahdenne, Pekka; Hiekkanen, Kari; Nieminen, Marko
A1 Alkuperäisartikkeli tieteellisessä aikakauslehdessä
Potilaskokemus on potilastyytyväisyyteen verrattuna moniulotteinen ja vähän tutkittu aihe. Terveydenhuollon organisaatioilta puuttuvat instrumentit kokemustiedon keräämiseksi potilaspolun eri vaiheissa. Nykyiset potilastyytyväisyyskyselyt keskittyvät sairaalahoidon laadun arviointiin aikuispotilaiden näkökulmasta, ja niiden tuottamien tulosten hyödynnettävyyttä sairaalan toiminnan kehittämisessä on kritisoitu vahvasti. Tässä artikkelissa kuvataan lapsipotilaiden vanhemmille suunnatun kokemuskyselyn kehittämisprosessi, kyselyn ensimmäiset versiot sekä jatkokehitystehtävät. Tutkimus on osa Lapsus-tutkimushanketta, jossa tavoitteena on kehittää potilas- ja kokemuslähtöisiä instrumentteja lapsipotilaiden ja heidän perheidensä kokemustiedon keruuseen ajallisesti pitkän potilaspolun eri vaiheissa. Vanhemmille suunnatun kyselyn kehittämisprosessi sisälsi seuraavat vaiheet: haastattelut 17 lapsiperheen kanssa, lapsiperheen potilaskokemuksiin vaikuttavien tekijöiden tunnistaminen (viisi teemaa) ja näihin liittyvien mittareiden määrittely (22 mittaria), kokemuskyselyn ensimmäisen version kehittäminen (67 kokemusväittämää) ja pilotointi, aineistonkeruu Lastensairaalan poliklinikalla (106 vastaajan aineisto), ja kokemuskyselyn toisen version (22 kokemusväittämää) kehittäminen eksploratiivisen faktorianalyysin avulla. Kyselyinstrumentin jatkokehitys sisältää kyselyn validoinnin uuden aineistonkeruun ja faktorianalyysin avulla. Tavoitteena on tiivistää vastaanottokäyntiin liittyvän kokemuskyselyn väittämien määrä noin kymmeneen ja toteuttaa kysely sähköisesti. Lapsus-hankkeessa tullaan kehittämään vastaavia kyselyjä myös potilaspolun muihin vaiheisiin. Näiden kehitystyö tulee noudattelemaan tässä artikkelissa kuvattua prosessia ja työn lähtökohtana on haastattelututkimuksen perusteella kehitetty kokemuskyselyn ensimmäinen versio. Tutkimushankkeen tuloksia on tarkoitus hyödyntää lähitulevaisuudessa paitsi Helsingin Uudessa lastensairaalassa, myös muissa vastaavissa lastensairaaloissa.
Remote Interviews and Visual Timelines with Patients: Lessons Learned
(2021-05-27) Valkonen, Paula; Karisalmi, Nina; Kaipio, Johanna; Kujala, Sari
A3 Kirjan tai muun kokoomateoksen osa
This article aims to support the design of remote user studies in the healthcare and well-being field. We introduce lessons learned from conducting remote interviews and using visual timelines as pretasks involving patients from two eHealth projects. Based on our experience, we conclude that remote interviews and visual timelines can provide rich data about user needs. However, careful planning is required. Building trust, rapport, confidentiality, and privacy requires extra effort from the researcher in studies involving sensitive topics. In this paper, we present a list of practical tips for planning qualitative health-related user studies.
Selfies of Sickness: The Use of Video Diaries with Chronically Ill Children
(2017) Karisalmi, Nina; Nieminen, Mika
A4 Artikkeli konferenssijulkaisussa
This paper describes the use of video diaries as a tool for understanding children’s patient experience and as a potential method for directly gathering patient experience information from children. It was hypothesized that this method would uncover otherwise hidden knowledge about children ages 10–16 years with chronic illnesses. The aim of this paper is to assess the potential applicability of this method as a standalone tool for the public healthcare sector to capture and better understand the patient experiences as a basis for continuous service development. Therefore, this paper does not describe the results on children’s patient experiences. The video diaries proved to offer rich data, but certain shortcomings were also identified. Motivating teens, especially boys, was found to be difficult. Needed changes are addressed, and suggestions for future work are presented.
What constitutes the patient experience of children? Findings from the photo elicitation and the video diary study
(2018-07) Karisalmi, Nina; Stenhammar, Hanna; Kaipio, Johanna
A1 Alkuperäisartikkeli tieteellisessä aikakauslehdessä
Patient experience (PX) is getting attention among researchers and healthcare service providers, but little is known about the experiences of child patients and how to explore those. This paper reports findings from a study in which two participatory research methods, photo elicitation and video diary, were applied to investigate the elements of children’s PX in the context of children’s hospital. The aim was to find out what elements constitute the PX of children aged 7–16 years. The research data were gathered in 2016–2017. Twenty-two child patients participated in the study: eight children aged between 7 and 10 in the photo elicitation part, and fourteen children aged from 10 to 16 in the video diary part. In the analysis, the data were first analyzed per research method but afterwards combined and analyzed together. Based on the analysis, four main themes of PX of children were identified: 1) hospital facilities and entertainment, 2) medical care, 3) social relationships with the hospital personnel and other people, and 4) feelings and coping with the illness. Feedback on the research methods from the participated children was mainly positive. Further work is needed to validate the findings and introduce new creative approaches to research PX of children of different ages.